I used to have extremely thick dark hair and now it’s wispy and I seem more gray regrowrh now too. Two, I now know it’s best not to go to the doctors for this painful problem. Save you the sad story. It was very soothing and worked for a few hours. The pain is severe. I was told last year my hair loss was due to rapid weight loss (and here I was thinking I was go wonderful to lose 70 pounds in 3 months…) and stress (my living environment at the time was awful…). I hope this helps anyone. I may not post on here again for a while, but I only want to speak once I have discovered some truths. I recently went through TE which ended about a month and a half ago. I took ferrous sulfate 325mg 2x a day for over six months. My bloodvalues for testosterone: Free testosterone: not calculable ( meaning non-existend ) Total testosterone: below lowest value. Also, if anyone has tried the Ovation Cell Therapy. Will only do a flat iron or hot comb and only occasionally. Have them check for the disease. My hair has been falling since i was 18 – im now 26. So many people posting here have described exactly the symptoms I’ve experienced for the last 5 years or so…terrible “burning” sensation in my scalp, which now has spread down my forehead & sometimes feels like it’s reaching to my eyelids, reddish-pink scalp, and severe hair loss. But, I have to admit, I see ZERO new growth. HI everyone I had posted some time back. I don’t know if I’ll ever be able to grow back the lost hairs, in my crown, but if I can keep it stable which it has been for a year or so, I’ll be satisfied enough at this point. If anything, the majority of my hair loss seems to be coming from my nape area…and just not growing back. I have been to several dr’s and all have said the same thing… hair loss is normal for a woman your age (57) and you have plenty of hair. I have – had – thick curly hair. Miserable. I was pain free for a couple of years, but in the last few months, I am experiencing the pain again. Up until now I never experienced any noticeable (even to me) hair loss. Im ANA positive, some autoimmune going on on my bowel, thyroid, skin, and obviously on my scalp and hair… He told me that I had male pattern baldness and there was really nothing I could do. I always try to be happy for him. I too suffer from an extremely sensitive painful scalp, mainly at the crown. My hair has thinned quite considerably too. I went to protective styles for my hair last year: wig (braids underneath, not too tight), sewn in weave (again, not to tight and not loads of hair), and for a while, no hair dye. My hair is naturally curley, and shiney so dr.s and friends also think I’m nuts. Because my hormones went out of wack, my autoimmune disorders, Fibromyalgia, sjogrens-(happens with Estro dominance), are much worse. I appreciate you caring. My scalp pain seems to have ended. This also goes along with fatigue and feeling down. I hope to find help soon. If you raise your progesterone, it is a good idea to lower your estrogen at the same time. Sorry if I sound negative but does anyone else wish nicole would post her secret? I do take Klonopin daily, but as I’ve taken it for over 6 years, I tend to discount that as a reason. I have all the same symptoms as described by people above. I am a hair stylist, with thin ( and now thinner), blonde hair. My hair started falling out 3 months ago. So psychologically this doesn’t stress me as much as combing my hair everyday or every other day and seeing hair fall. It has Tea Tree Oil in it and it is Paraben Free. It seems to be precipitated by the ponytail. The medical name for this skin condition is acanthosis nigricans. Oh how my hair/head hurts at times and only time seems to be the relief for me. I have scars and sore scalp for about 2 years now, applied Elocon initially which improved it but its back. Although ironically, the reverse is true for my bangs/part on top of my head! The symptom neither allows discrimination of the cause nor correlates with the activity of hair loss. All my blood work and scans come back totally normal. Jan, to much Vitamin A can also cause HL. (Until I figured it out!!) Alot of our problems could be because of sugar, and alcohol is like jet fuel sugar, by the way, worse than white sugar. The potential diagnosis has ranged from Occipital Neuralgia to Lyme Disease to an underlying Psychological trigger. Ketoconazole 2% is generic for the more common name Nizoral. It’s to the point I have handfuls in the shower or if my daughter “pulls” at my hair is all comes out. It helps. For “painfulhead”: what do you mean by “the immune response” causing the pain? Love ,light and happiness.. I noticed my hair line has slowly been receding. I’m determined to find out. But if a woman dont stress, no one will. Good luck to you and to me. well i guess same theory applies here….i’m not a fruit person and so i guess a lack of the basic vit C could be a cause…so i’m continually drinking OJ or taking vit C supplements (as it’s time released…vit C is a water soluble so you basically urinate it out throughout the day)…vit C is perfectly safe to take, if taken too much, you just get diarrhoea. I usually don’t apply conditioner to my scalp because it makes my hair look greasy-dirty. It has remained bald till this day and still sore to touch. The skin feel weird to touch like an Iron burn. There has to be a Dr. who can diagnois this and provide treatment somewhere in the world. I ordered some lithium orotate and plan to try it out. So far the only thing that has made sense to me is what I read on wikipedia “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain. I have had this three years and lost so much hair. I returned from Florida and 3/4 of my hair fell out. So glad I found this site. The first 2 went great. Obviously this has caused so much depression, anxiety and stress that I’m trying to manage now so it won’t get worse. She also said that there is a big difference (supposedly) between dandruffs. Because, they dont seem to have a reason for it either. I think it defines us. I have gotten so many compliment on my wigs and so many people are fooled and think it’s my bio hair. Sorry about the typos. Although I do not have flaking, sebborea, oiliness or bald spots, I do have tightness, pain ,sunburn feel,tingling, crawling and very sensitive scalp mostly in crown and right side of the head. If you’re pregnant, don’t use any anti-lice shampoo until talking with your doctor. So when I started to notice the scalp feelings and hair thinning I was very worried. . Oh and I shed a lot after my hair wash. If I do this, I would put the aloe or aloe mixture right away after when Im out of bath. I even had a first-degree burn mark on the nape of my neck. The standards for thyroid function had changed. The neurontin on 300mg worked but upping to 900 I am retreating back to horrible flare ups. )i’m on a sugar free diet hope it works.keep your faith don’t loose hope.and if u have my symptoms please ask your doctor for plaquenil it gave me my life back and maybe u will have no side effects(dark lips is one of the rarest side effects).and if u have hair loss take hair suppliments and use a gentle shampoo.balanced diet with a lot of vegetables;fish and fruits,drink a lot of water.try to enjoy life (i know u can’t when u have scalp burning,so ask your dr for plaquenil)if u can’t manage stress maybe u should see a doctor who will give u an antidepressant or a medication to relief your stress, but be carful some antidepressant can cause hair loss it’s cited as a side effect.there are some herbs and suppliments that help with anxiety.i hope this will help .my hair loss have stoped but little regrowth ;i’ve moved to minoxidil 5 (3 applications a week at night;the doc said it will help the regrowth,i hope it works)as for my painful scalp it doing wonderful as i continue to hide my dark lips =D.god bless u all.there is solutions just keep on searching and reading more about your condition.sorry for my english i know it’s bad ;).au revoir, Hi people. May I ask anyone if they have noticed that the hotter the environment that you are in increases the pain! He said he didn’t know why my hair was falling out. I also take 10,000 IU per day of Vitamin A from fish liver oil to balance the Vitamin D3. I have experienced scalp pain on and off for a few years. I did not have a full hysterectomy, I till have my ovaries. This was wounded feeling of stinging as though a bee had stung me. Mostly in the back, slower in the front. My scalp is tingly & numb-ish and burns (at the same time) and I’m always aware of the feeling. I didn’t follow the rest of his protocol & made an appointment to see a trichologist and an appointment with my GP for a blood test. I thought it was because I’d had a perm after taking my hair down a month prior. I am 21 and this has been going on since about the end of last year, so probably 6 months. So, Ill try to find one out as long as I m putting up with my head up in my —.. ha ! The second when I moved across the country away from my close knit family. I am 50 years old and have gone through hairloss fazes since my divorce 11 years ago. I knew people who went there and had long, nice hair so I never suspected anything was wrong. You can feel the pressure along both sides and the back of your head. In a way, I think that I have begun to do this over the last few months without knowing. If anyone has something positive to add …like ” my hair has grown back” that would be great. I have a list of places to go to find out about a wig topper. My heart goes out to every sister here with this problem – my scalp is pink, and shines through, and I try not to obsess but here I am again! I really, really wished it wasn’t so complicated! On Stress – this creeps up on some of us and we don’t realize we are stressed. 2) I got holistic healing and radically changed my diet to a “healthier” diet. It is so depressing to have to wake up to everyday . I believe there is a clear answer to this dilemna. Good luck, because I know how much you are suffering! Well, not this one. with the Charkas or understanding spiritual issues in regards to your body problems.. Find your way to better health. If you don’t you will probably die as it is not something that will go on it’s own. I think, beside the stress, I became malnourished. I hope that it turns around soon for you. I have no pain and no other symptoms. Did have CT scan and all was supposedly fine. At about the same time I noticed my hair falling out so badly was not long after I had my hysterectomy. I wish you all the best of luck and hope you find some kind of answer. How is your hair holding up now and have you done much different lately? I heard about Braggs Apple Cider Vinegar, beeb using it for the same problems discussed here and also for high blood glucose. Forget combing and brushing. I do stress xtra more over my bills on the verge of being terminated. I also had some deep cyst acne flame in the last week or two. For my son and myself. If you have concerns about your hair and scalp health or notice your hair is changing or thinning, book an appointment with your Advanced Dermatology hair and scalp specialists to learn about the most advanced options available to help you enjoy fuller, shinier healthier hair. I also have burning eyes. Squeeze a fresh lemon in warm water when you wake up in the AM, drink it on an empty stomach and wait 30 mins before adding anything else to your day. I eat mostly wheat free, but you know that oats and rye etc also have gluten. I’m now 53 and I’ve had unexplainable health problems for years. There’s a saying that sometimes the answer is right in front of your face so much that you would never suspect but it is so obvious! If anyone can advise me medicine of TRICHODYNIA. I have the same burning sensations others have mentioned, but no redness (although I do have a ton of flaking, but’s sticky, not dry…). it’s burrnin as i type! Took antibiotics=yeast infection just before hair loss started. Sure. I own a wig that I can’t wear because I live in a high-wind area. It contains sulfur. My message is first to consider that the cause may be some type of allergy / food sensitivity. I get a series of injections along the front of my hairline (this has side-effects which should reverse over time), a steroid topical , proscar (5mg per day), and minoxidil. It’s a little pricey, though. I’m on antibiotics to try to get that to reduce. ARRRRRRR! Does anyone know about this and how it should be applied? The Derm, was pretty sure it was LLP so he perscribed Plaqueinel. I’ve done, scalp biopsy, I’ve have done Bio-identical treatments ( implants, ouch!) and gave me a scrip for topical steroids for the dandruff/inflammation on my head. One friend mentioned that Biotin (a B vitamin) might be helpful. I posted last year. I will admit the Clobex is a bit of a double-edged sword: it is a STRONG corticisteriod and causes loads of side-effects (weight loss, slight vision impairment, dizziness, lowered immune responses, and hair actually temporarily falls out WORSE than before…). I am losing all my hair since more than 2 year day after day. I just turned 40 and i don’t want to be/stay bald. Hope you will find the way! I’m willing to try it. Eat clean and give your liver, pancreas, and kidneys an opportunity to recover. But yes, it is very maddening to be chronically exhausted and have your hair falling out and you scalp on fire all at the same time! These could be signs of an infection. Your Total-Body Skin Cancer Exam with your Advanced Dermatology physician will include your scalp. I’ve bought.i believe it has to be stress.i suppose until we reorganise our lives or at least become a little happier with ourselves will we see a difference. However after time the scalp pain has clearly coincided with a very rapid hair loss at my temples, hairline (which has receded about 3/4″ in last last 3 months and the crown of my head is extremely thin. When I can I rub a little olive oil on the sore areas of my scalp and it does give me some relief. I’m going to see a doctor soon about this. Hair loss can be caused by some medical conditions and treatments, and hormonal changes. Still I lose hair daily, although the pains are less frequently, thank goodness. I literally feel your pain guys! In the beginning it was so bad that I had to put an ice pack on my head to get relief. Believe me it will. Then, I noticed my skin growing increasingly oily. Turns out I had a rare disease call Giant Cell or cranial arteritis which is deadly if not treated with prednisome! Well I started using Johnson’s baby shampoo, went the several derms and a hair specialists in ATL they gave me a shampoo that doesn’t have any chemicals in it, well it hurt bad. I wake up at night itching. Now, I am in agony to sleep or even move my hair as I style what’s left of it. It was not worth it. I am really hoping that this irritation will resolve on its own and that my hair will grow back. The smell was gone and my scalp no longer feels oily. I have no idea what to do. I put the Nioxin conditioner in, and I almost screamed it burned so bad. I guess cancer patients use them. I am 53 years old and this problem started years ago, so don’t be misled by age. My weight is being maintained and I cannot discern anything that would cause this. Please help it seems to be spreading. But I feel the path is finally laid out. Here’s my update. along with a strong b vit complex,. I would also feel a sensation like small, fast vibrations in an area where I would find one of these hairs. I’m already on my second marriage which is falling apart as I type this…what else? Three of my doctors had no clue but gave me Rx’s for $200.00 worth of cortisone lotions and potions that made it worse! A hair relaxer works, to straighten it but that only last for three weeks then the new growth comes in curly ( I can feel it coming in) painful!! I wish I could help you figure out a definite cause, but I just don’t know. While I did not have any surgeries, illnesses (that I’m aware of) or trauma, I did have several significant stressors during that time frame, so I’m hopeful this hair loss is a transient and temporary thing. He said it was from the dry scalp.Well I just dont believe him it is something more .Today is Tuesday and I do feel some better , Saturday & Sunday was such bad days! You’ll just have to try some and find what will work for you. My story; I usually wash my hair with natural shampoos twice a week, sometimes once when I can get away it. If you don’t know the cause of your hair loss, call your dermatologist for an evaluation. A dermatologist said I had to use Rogaine/ minoxidil… my scalp pain became excruciating. They were small waves all down the hair, kind of like looking at an EKG. Anyone try steroids yet? Hi – its me again. When I completely stopped taking all forms of supplements, vitamins, minerals, herbs, oils, etc. OMG…I think the Tea Tree Oil is the answer! I feel best when I get enough sleep, take my immune supplements ( I use OPC3) and do some mild exercise and much stretching. I was diagnosed with AU 4 years ago (having lost all my hair on my head/body over the course of 10 days – I then lost my nails). I took birth control most of my adult life. I’m so sorry we have this and hope it will eventually stop. I was put on cortisone drops which frankly only gave me mild relief. I also am a little hypothyroid. My hair fell out in clumps. I am on estradiol and prometrium(6 weeks now, but I was told it would take 2 – 4 months to see the benefit hairwise). I color my own hair with a non permenent color & left it on too long once & my scalp felt a burning sensation. My friend had to leave the room with me as I panicked in pain. My bloods came back with a ferritin of 22, much too low. I use organic shampoo and conditioners and I no longer dye my hair. If this sounds like something you guys want to talk more about I’d be happy to share . For me, it’s not about vanity. It seems to to subside at times and then the pain intensifies… I have gone to another doctor and they don’t see anything wrong… this doctor even went as far as to say that he doesn’t see any thinning or redness… Help! Atrophy can set in where the shot is administered. Also, if scratching from the itch of head lice has produced an infection, your dermatologist should evaluate and treat it. But as soon as I wet it again with no conditioner it feels like hay/straw. I was told I should see less hair fall within the next 3 months and new growth by about 6 months. The first when I broke up with a long term boyfriend. They have ordered a biopsy. They are goliath. It helps me greatly! The book ” Eat Right 4 your Type” (meaning the 4 blood types) might help some of you. Patting the top of my head clearly demonstrates to me that my density has not improved, despite how long my hair is and appears to most people. Like many others I always had thick hair before. This website has validated some of the isssues I’ve been having. I will post again once I see my dermatologist. I hope you find some answers. I mean like a miracle and it very well may be a miracle because I literally spent a year in pray and believe you me I don’t think God thinks losing hair is trivial for a woman because it is biblical! Main diagnosis: Androgenic Alopecia. Possibly PCOS. Dry elbows is a common skin condition with several causes. I hate this for everyone. In the hairloss forums I’ve read of so many people that have had scalp pain and hair loss. This will penetrate to the papula and stimulate new hair growth…and yes I am a stylist and this really worked. Also be very careful when applying your face cream and avoid your forehead and temple area, if it is irritated as this will only exacerbate the irritation . I just had my third child 01/09/2008 and after about 6 months my hair started coming out.

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